Hi there Megan! I’m so glad you took the chance to write. It really is an initial shock and then before you blink you’re 4 years in and they’re playing soccer. It’s an amazing, sometimes heart-aching journey but I promise your story with your sweet son will be a beautiful one. Please email if you ever have any questions. Blessings on the rest of your pregnancy!

Thank you for writing such a beautiful blog. No parent understands the hard decisions that one has to make when their child is born with an abnormality other than that child’s parents. I am currently 32 weeks pregnant and my husband and I found out at our 20 week appointment that our son has a complete absence of his left fibula and his left foot is not formed and will not be functional and of course our orthopedics specialist said Fibular Hemimeila. He also has the notorious clubbed foot on the opposite side. We have often thought about how we will approach the topic of our son’s soon to be prothesis and had a plan much similar to yours on of course treating him like he is no different- if he falls he gets up himself, well because he can ! I love how you analyze his feelings as well on things and his prothesis and make it clear to him that if he ever needs to talk you’re there, you seem like very loving compassionate people. Like I mentioned, I believe my husband’s and I approach will be similar. I really enjoyed reading your article it is really nice to relate with another FH parent because of how rare it is. I believe I read on your other page that you knew no one else’s children to have a prothesis or abnormality , my husband and I also. The initial shock is incredible but seeing other parents of FH children or FH adults themselves make life so much easier. The support of other FH parents made the word Fibular Hemimelia comforting for us. I just thought it was really nice reading your article.
Take care!
-Megan

Thank you Christine! We feel like the lucky ones. Thank you for your sweet comment!